LearnEDS.org
EDS/ Ehlers-Danlos Syndromes & HSD/ Hypermobility Spectrum Disorder
Providing Support & Resources about Connective Tissues Disorders:
Welcome to EDS Louisiana
EDS (Ehlers-Danlos syndromes) are a group of underlying genetic conditions which cause faulty connective tissues. Connective tissues, or collagen, connect every part of our bodies. When they are faulty, this can lead to an array of problems. Many impacted by this condition suffer greatly without ever knowing or understanding that these are true medical conditions and many may live decades, or even their entire lives without ever receiving answers, validation or treatments. While there are no cures, there are ways to manage the many symptoms that can be challenging to live with. Help us spread awareness and offer support by following and sharing our social accounts provided below.
News and Activities
Awareness Activities
Many Thanks to Mona Hebert, our Executive Director, for all that she's done to make Awareness Month successful. As a result of Mona's work May was declared Ehlers Danlos Syndromes and Hypermobility Spectrum Disorder Month.
Representative Stephanie Hilferty presented and read aloud the proclamation presented by Governor Jeffery Landry.
As part of Awareness month, The State Capital and Caeser Super Dome were lit up in colors representing EDS and HSD Syndromes. These achievements are all part of our continued effort to increase awareness of these syndromes in an effort to bring better care to our EDS/HSD community.
Educational Materials
We received many requests for educational materials. Hundreds of brochures, ribbons and cards were mailed out to all who sent in requests. We will continue to take requests as we see the great need for it!
If you would like to receive Educational materials , click the link below and complete the form provided. Please allow ample time for us to prepare and mail these educational packets since we are a volunteer organization & are made up of strictly volunteers of which mostly are each affected by EDS or HSD.