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EDS Louisiana is celebrating 5 years

Join our Celebration! 

Our Mission

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The mission of EDS Louisiana, Inc. is to provide support and resources to Louisiana patients and medical professionals about Ehlers-Danlos syndromes and related conditions via awareness and education.

Our Vision

Our vision is a better Louisiana where Ehlers-Danlos syndromes and related conditions are fully understood, treated, and supported.

Image by Frida Lannerström

Welcome to EDS Louisiana

EDS (Ehlers-Danlos syndromes) are a group of underlying genetic conditions which cause faulty connective  tissues. Connective tissues, or collagen, connect every part of our bodies. When they are faulty, this can lead to an array of problems.  Many impacted by this condition suffer greatly without ever knowing or understanding that these are true medical conditions and many may live decades, or even their entire lives without ever receiving answers, validation or treatments. While there are no cures, there are ways to manage the many symptoms that can be challenging to live with. Help us spread awareness and offer support by following and sharing our social accounts provided below. 

  • Instagram Page
  • Facebook Private Group
  • Facebook Business Page
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Support Groups

Connect with one of our Support Groups and join our community

Volunteer

EDS Louisiana is run 100% by Volunteers. We have a wide variety of positions available. Join us to make a difference.

Be Counted

Complete our State Registry Form so that you can be included in future updates. 

Resources

We have a large number of resources available to help you navigate through your EDS journey. 

Donate

EDS Louisiana, Inc is a 501(c) (3) nonprofit organization and operates strictly on a volunteer basis. 

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If you can't connect the issues.

think connective tissues

Ehlers Danlos Syndromes and Hypermobility Spectrum Disorders are connective tissue disorders caused by faulty collagen. Since collagen has makes up more than 20% of the human body, a large variety of symptoms, are common in the EDS community. 

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News and Activities

Awareness Activities

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Many Thanks to Mona Hebert, our Executive Director, for all that she's done to make Awareness Month successful. As a result of Mona's work May was declared Ehlers Danlos Syndromes and Hypermobility Spectrum Disorder Month. 

Representative Stephanie Hilferty presented and read aloud the proclamation presented by Governor Jeffery Landry. 

As part of Awareness month, The State Capital and Caeser Super Dome were lit up in colors representing EDS and HSD Syndromes. These achievements are all part of our continued effort to increase awareness of these syndromes in an effort to bring better care to our EDS/HSD community. 

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Educational Materials

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We received many requests for educational materials. Hundreds of brochures, ribbons and cards were mailed out to all who sent in requests. We will continue to take requests as we see the great need for it!

 If you would like to receive Educational materials , click the link below and complete the form provided.  Please allow ample time for us to prepare and mail these educational packets since we are a volunteer organization & are made up of strictly volunteers of which mostly are each affected by EDS or HSD.

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